Spina Bifida Adult Resource Team

The Spina Bifida Adult Resource Team is a new initiative funded by NSW Health and commenced in August 2009. The team, which consists of a Clinical Nurse Consultant and a Senior Occupational Therapist, aims to provide clinical consultation, education, support and preventative health strategies to adults with spina bifida across NSW health services.

It is a state wide service and some of the aims of the service are to:

• Assist any young person making the move from paediatric to adult services
• Orientate any young person to their new adult health service
• Assist with any medical concerns as well as provide education and support to any adult with spina bifida
• Linking adults to appropriate health services as required
• Promote healthy lifestyles for all clients with Spina Bifida
• Attend all adult Spina Bifida Clinics across NSW
• Education to community services about spina bifida

Click on the below links for some more information on this service and relevant resources:
Spina Bifida Adult Resource Team Service Flyer
Moving on to adult health services booklet
Referral Form to Spina Bifida Adult Resource Team
Information on Transition from children to adult services

Northcott's Spina Bifida Adult Resource Team has its own facebook page. Get connected by logging into facebook and then clicking here

Contact Us
Joanne Brady
Team Leader/CNC
Phone: 02 9472 5214
Email: joanne.brady@northcott.com.au

Northcott Spina Bifida Group

The Northcott Spina Bifida Group is run by Northcott Disability Services and provides support and information to individuals with spina bifida and their families living in NSW and the ACT.

Services include:

Click here to download the Northcott Spina Bifida Group service flyer.

Torque Newsletter April 2011 Edition

SPINA BIFIDA AWARENESS WEEK - September 1-7

The Northcott Spina Bifida Group works in partnership with Northcott’s Marketing, Communications and Media Department to develop an awareness campaign each year. This involves celebrating the achievements of people with spina bifida as well as reminding people about the importance of taking folic acid at least one month before conception and during the first three months of pregnancy.

Spinasaurus, the Northcott Spina Bifida Group mascot, who has a gap in his spine to represent spina bifida, visits school and hopitals across NSW to educate the community about the disability. 


  

 SPINA BIFIDA CHECKLIST AND EMERGENCY HEALTH CONTACT CARDS

The Northcott Spina Bifida Group recently worked in partnership with the Greater Metropolitan Clinical Taskforce and South East Sydney Illawarra Area Health Service to produce a Spina Bifida Health Checklist and Emergency Contacts card.

The advantage of this card over larger health diaries is that it folds down to credit card size with a plastic cover and can easily fit within a wallet or purse. The card also contains specific information about spina bifida and relevant health and emergency contacts to assist people with spina bifida to better manage their health.

A number of cards have already been distributed to Spina Bifida Clinics across NSW and people are encouraged to work alongside medical staff to complete the relevant information.

Useful websites: 

International Federation for Spina Bifida and Hydrocephalus - www.ifglobal.org

The Spina Bifida Association of America (SBAA) - www.sbaa.org

CONTACT US

Kayleen Flood (Administration Support) 
Phone: (02) 9890 0990 
Fax: (02) 9683 2827
Email: kayleen.flood@northcott.com.au